| Location | Balloch. |
| Age | 6 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/07/2001 |
| Date of Death | 31/01/2008 |
| Visitors | 8,284 since 25/05/2008 |
| Creator |
ROBBIE HOLLERN
BORN 31ST JULY 2001 BECAME AN ANGEL 31ST JANUARY 2008
Robbie lived in Balloch with his mum, dad and wee sister Rosie.Julie.
He was born healthy on time and developed normally until 20 months old when he woke up and had what
we thought was a shake or shiver. These continued more frequently over the next few days. After
taking him to the doctors where they seemed really concerned about Robbie's developement delay which
we had never noticed, being our first child we watched Robbie reach milestones which to us seemed to
be on time. Talking, crawling, standing, pulling himself up at furniture and playing with toys for
his age.
Any developement Robbie had deteriorated rapidly until it was no more, we were doing everything for
him. He was being treated for myoclonic epilepsy as they had no diagnosis for us at this stage.
After nearly 2 years and more deterioration the doctors did further tests where this confirmed
Robbie was now blind and he was then diagnosed with INFANTILE BATTENS DISEASE which is the most
aggresive form of Battens. At this time I was pregnant with my second child and had about 6 weeks to
go. They asked if I wanted tested then but what would have been the point. We decided to wait till
after the birth and try enjoy our first few months with our new baby.
This was'nt to be and after about 6 months we had Rosie.J. tested and it was confimed that she also
had the disease. We were absolutely devastated. How could life be so cruel, not only were we going
to lose one child now another.
Robbie was such a handsome beautiful and wonderful boy who touched the hearts of everyone around
him. Even people who had just maybe read his story in the paper. Our hearts are breaking and we miss
him so much we still cant really believe he is not here. Rosie keeps us going, we try live day to
day but it is hard not to think ahead as we know what is in store.
You will find anything you want know about Battens on the internet.
IN MEMORY OF OUR TWINKLING STAR ROBBIE XXX
ROBBIE NOW HAS A NEW LITTLE SISTER ROXIE JOY WHO WAS BORN ON 24TH JUNE 2009. SHE IS HEALTHY AND FREE
FROM BATTENS DISEASE.
thinking of you
*~*~^i^ Thinking of your angle^i^ ~*~*
^i^ You may not know which path to take* ^i^
^i^ or be sure what to do* ^i^
^i^and life seems full of obstacles*^i^
^i^ that you can't see your way through*^i^
^i^ but there are angels who can help*^i^
^i^ for thats their special task*^i^
^i^ and one will gladly help you too*^i^
^i^you only have to ask* ^i^
^i^ for there's angel of guidance*^i^
^i^ beside you every day*^i^
^i^ if you trust her,she will take your hand*^i^
^i^ and gently show the way*^i^
*``^i^ ♥.·°☆ °·.♥.·°☆ °.♥♥.·°☆ °·.♥.·°☆ °♥.·°☆ ° *``^i^
♥♥ SWEET LITTLE ANGEL ♥♥ THINKING OF YOU ♥♥ R.I.P.♥♥
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