| Location | Balloch. |
| Age | 6 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/07/2001 |
| Date of Death | 31/01/2008 |
| Visitors | 8,282 since 25/05/2008 |
| Creator |
ROBBIE HOLLERN
BORN 31ST JULY 2001 BECAME AN ANGEL 31ST JANUARY 2008
Robbie lived in Balloch with his mum, dad and wee sister Rosie.Julie.
He was born healthy on time and developed normally until 20 months old when he woke up and had what
we thought was a shake or shiver. These continued more frequently over the next few days. After
taking him to the doctors where they seemed really concerned about Robbie's developement delay which
we had never noticed, being our first child we watched Robbie reach milestones which to us seemed to
be on time. Talking, crawling, standing, pulling himself up at furniture and playing with toys for
his age.
Any developement Robbie had deteriorated rapidly until it was no more, we were doing everything for
him. He was being treated for myoclonic epilepsy as they had no diagnosis for us at this stage.
After nearly 2 years and more deterioration the doctors did further tests where this confirmed
Robbie was now blind and he was then diagnosed with INFANTILE BATTENS DISEASE which is the most
aggresive form of Battens. At this time I was pregnant with my second child and had about 6 weeks to
go. They asked if I wanted tested then but what would have been the point. We decided to wait till
after the birth and try enjoy our first few months with our new baby.
This was'nt to be and after about 6 months we had Rosie.J. tested and it was confimed that she also
had the disease. We were absolutely devastated. How could life be so cruel, not only were we going
to lose one child now another.
Robbie was such a handsome beautiful and wonderful boy who touched the hearts of everyone around
him. Even people who had just maybe read his story in the paper. Our hearts are breaking and we miss
him so much we still cant really believe he is not here. Rosie keeps us going, we try live day to
day but it is hard not to think ahead as we know what is in store.
You will find anything you want know about Battens on the internet.
IN MEMORY OF OUR TWINKLING STAR ROBBIE XXX
ROBBIE NOW HAS A NEW LITTLE SISTER ROXIE JOY WHO WAS BORN ON 24TH JUNE 2009. SHE IS HEALTHY AND FREE
FROM BATTENS DISEASE.
hi
Hi Robbie off to centre parcs tomorrow with your wee sis Rosi.J. Popped up to the hospice today to say hi to your friends and that is Damien on his way to you and alll your friends as he has became an angel. So I'm sure you will all look out for him. He can tell you all about the Pussycat Dolls as he got to meet them all last month his mum was telling me. So you take care, I am sure you will be with us on our travels anyway. Love you Mum xxxxxxx
LISTEN
Listen Lovely lady,
To the rustle of the trees,
To the leaves quite gently falling
And the whispers in the breeze.
Listen to your heartbeat,
To the wonder all around,
To natures ways and sunny days,
To every single silent sound
Listen lovely lady,
To the whisper in your ear,
To the gentle hum of nature,
Or as your eyes release a tear
To the noises all around you,
To the swallows in full flight
Or the gentle lapping ocean,
On a Carribean night.
Listen to the sun rise,
Listen to a cloud,
Throw back your hair and listen
As you think my name out loud
I'm there you know, I'll hear you,
I'm with you every day,
I'm there to gently hug you,
And to listen as you pray.
I am with you every minute,
Gently tugging at your hair,
Whispering 'Mum-I love you'
“I’m still here” and “I still care”,
I need you to stop crying,
And to laugh again you see,
Or to smile when you see things,
That remind you Mum - of Me.
I am safe now Mum - and healthy,
I can stand up straight and proud,
I can dance and jump and run you know,
And shout my name out loud.
I can see you Mum and hear you,
I can reach out for your hand,
With you, I’ve walked the beach at night-
My silent footprints in the sand.
So listen lovely lady,
To the sweet sounds of life around,
For within those gentle moments,
My whispers can be found.
That sudden gust, the gentle tugging,
Sometimes felt on neck and hair,
Are just my little validations,
To prove that I’m still there.xxx
Author Unknown.
hey wee guy
can't believe it's been over a year Robbie, it's gone by so fast. you've had lots of messages & candles and all your flowers were lovely. a very lucky & special boy. hope you liked the bear in the spaceship, even though it wasn't buzz.
I've spent the last few days having fun with your wee sis, we made lots of mess yesterday, I'm sure you'd approve. keep shining brightly for your mum & dad and look after both wee sisters.
miss you
luv carol xx
LAST YEAR
Yesterday last year was when you were laid to rest in your garden Robbie. Can't believe it, but its sooooo much colder this year, what about all the snow. Its all lying on your beautiful flowers in your garden that all your friends brought for you. Did you see your lovely plaque from Sophie? also someone left a special guardian angel but we dont know who! Going into Robin house later with Rosie.J so looking forward to that. Will go for now and speak to you later special handsome boy. Love and miss you so much Mum xxxxxxx
hi
hi wee man thought i would write you a wee note to say hi. does not seem a year has passed already it just seams like yesterday.mind and look down over your sister and watch her for your mummy and daddy please. nite nite wee man sleep tight
robbie
hello there my names tracey you have sweet little boy there hope there is cure for roise jane some day my heart goes out to you i have 2 children my self a boy whos 5 and a girl who is 3months god bless you and night night robbie sleeping with and angels xxxx
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SLEEP TIGHT LITTLE ANGEL XXXXXX
Every day and every night
When you feel the need
to hold me tight
Just blow a kiss into the sky
for i will be that close by
In the heavens throughout the day
I watch over you and hear you pray
I see you smile and shed a tear
For you know that im still near
I'm the angel of your eye
Your angel in the sky
9.10PM JANUARY 31ST 2008
My darling Robbie we are just minutes away from when you took your last breath and got your angel wings this time last year. I can't believe a whole year has passed as it feels like it all just happened. It is all so fresh in my head how you went and came back a few times before finally going. I still believe in my heart of hearts that was your way of preparing me to let you go with the angels. I know that you are in a better place doing all the things you never got to do down here and I do try think of that when I am so sad and missing you. People say time is a healer and that it will get better, well I am sorry I don't think I will ever heal or feel better from losing you. You have had lots of candles lit for you and some lovely poems which has been a comfort for me, dad and Rosie.J. today. Hope you saw your balloons which we sent up for you, mind share with your angel friends. You got some lovely floweres at your garden too! Well wee sis is here sitting beside mum as I'm sure you will see sleeping as usual she will gear up for the nightshift just shortly for her normal being awake thru the night just like you used to do. Will go for now my darling boy so you keep shining bright just like you always do.
I love you more than ever Robbie and miss you so much it aches more and more each day.
MUM XXXXXXX
Right now I'm in a different place
And though we seem apart
I'm closer than I ever was
... I'm there inside your heart
I'm with you when you greet each day
And while the sun shines bright
I'm there to share the sunsets, too
... I'm with you every night
I'm with you when the times are good
To share a laugh or two,
And if a tear should start to fall
... I'll still be there for you
And when that day arrives
That we no longer are apart,
I'll smile and hold you close to me
... Forever in my heart
Love always your very special angel xxxx
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