
| Location | Balloch. |
| Age | 6 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/07/2001 |
| Date of Death | 31/01/2008 |
| Visitors | 8,281 since 25/05/2008 |
| Creator |
ROBBIE HOLLERN
BORN 31ST JULY 2001 BECAME AN ANGEL 31ST JANUARY 2008
Robbie lived in Balloch with his mum, dad and wee sister Rosie.Julie.
He was born healthy on time and developed normally until 20 months old when he woke up and had what
we thought was a shake or shiver. These continued more frequently over the next few days. After
taking him to the doctors where they seemed really concerned about Robbie's developement delay which
we had never noticed, being our first child we watched Robbie reach milestones which to us seemed to
be on time. Talking, crawling, standing, pulling himself up at furniture and playing with toys for
his age.
Any developement Robbie had deteriorated rapidly until it was no more, we were doing everything for
him. He was being treated for myoclonic epilepsy as they had no diagnosis for us at this stage.
After nearly 2 years and more deterioration the doctors did further tests where this confirmed
Robbie was now blind and he was then diagnosed with INFANTILE BATTENS DISEASE which is the most
aggresive form of Battens. At this time I was pregnant with my second child and had about 6 weeks to
go. They asked if I wanted tested then but what would have been the point. We decided to wait till
after the birth and try enjoy our first few months with our new baby.
This was'nt to be and after about 6 months we had Rosie.J. tested and it was confimed that she also
had the disease. We were absolutely devastated. How could life be so cruel, not only were we going
to lose one child now another.
Robbie was such a handsome beautiful and wonderful boy who touched the hearts of everyone around
him. Even people who had just maybe read his story in the paper. Our hearts are breaking and we miss
him so much we still cant really believe he is not here. Rosie keeps us going, we try live day to
day but it is hard not to think ahead as we know what is in store.
You will find anything you want know about Battens on the internet.
IN MEMORY OF OUR TWINKLING STAR ROBBIE XXX
ROBBIE NOW HAS A NEW LITTLE SISTER ROXIE JOY WHO WAS BORN ON 24TH JUNE 2009. SHE IS HEALTHY AND FREE
FROM BATTENS DISEASE.
Daddy please don't look so sad,
Mammy don't you cry,
Cause i'm in the arms of angels,
And they sing me lullabies.
Please try not to question god,
Don't think he is unkind,
Don't think he sent me to you,
And then he changed his mind.
You see I am a special child,
I'm needed up above,
I'm the special gift you gave him,
The product of your love.
I'll always be there with you,
Just watch the stars at night,
Find the brightest star thats gleaming,
That's my halos brilliant light.
You'll see me in the morning frost,
That mists your window pane,
Thats me in the summer showers,
I'll be dancing in the rain.
And when you feel a gentle breeze,
From a gentle wind that blows,
Thats me, I will be planting,
A kiss upon your nose.
When you see a child at play,
And your heart feels a little tug,
That's only me once again,
Giving your heart a hug.
So Daddy please don't look so sad,
And Mammy don't you cry,
I'm in the arms of Angels,
And they sing me lullabies.
your first year in heaven xxxx
My darling son
My darling son was taken
From his mothers love
To live with the angels
In heaven up above
I did not have him with me
For the time I should have had
No longer can I hold him
Which makes me very sad
The pain of losing my son
Shows in every single tear
I spend each day missing you
Longing to have you near
Life for me is lonely now
Without you by my side
My Broken shattered heart
Is very hard to hide
People tell me that time is a healer
That the pain will go away
They don’t understand
That this pain is here to stay
For when you lose a child
There is nothing that can compare
The bond we had at their birth
Will never leave, it’s always there
The love a mother has
Runs so very deep
That love is so special
It’s in her heart to keep
A mother’s heart is broken
She is ripped apart inside
There is a part of her missing
It left when her child died
So please don’t tell me to get over it
For this I can not do
Unless you understand my feelings
And this has happened to you
Only another mother who has lost a child
Can understand my pain
Because they also suffer daily
As the memories of their child remain
We are a band of mothers
Whose hearts will never heal?
For the loss of our children
Is for us, so very real.
With love
*
God called your name so gently,
That only you could hear.
No one heard the footsteps,
Of angels drawing near.
*
Softly from the shadows
There came a gentle call,
You closed your eyes and went to sleep,
And quietly left us all.
*
Your Shining Star
I know today is hard to bear
the pain just won't subside
I know how much you miss me
and your heart breaks deep inside
But know that I am happy
I can run around and play
I've made new friends both big & small
and we have lots of fun each day
I often go fishing with grandad
and I'm spoiled with hugs from great gran
but the love that you gave, is the best love of all
and I know just how lucky I am
Although you cannot see me
you know i'm always near
I give you hugs when you're upset
and I kiss away each tear
So please don't be sad without me
as I'm with you by day and by night
when your sleeping in bed, I'm snuggled up close
and I fall asleep holding you tight
Memories are kept for a lifetime
It's love that strengthens that bond
brightly shining, like a shooting star
'....to infinity and beyond'.
Carol Sorrell
LAST YEAR
Hi Robbie have put on the photo of you and your wee sis Rosie.J . It was taken yesterday this time last year when you had a really good day in the hospice just before you became an angel on the 31st January. Little did we know that your angel day was so close. Can't believe a year has past so quickly it feels like yesterday and aches and hurts so much.
Everyone misses you so much. Love you Mum xxxxxxx
No person is ever truly alone.
No person is ever truly alone.
Those who live no more,
Whom we loved,
Echo still in our thoughts,
Our words, our hearts,
And what they did
And who they were
Becomes a part of all that we are.
Forever.
(By Richard Fife)
LAST YEAR
Well this time last year Robbie on January 11th was when you ended up in hospital. Little did we know just how serious it was. You stopped breathing when you got there and gave your dad such a fright. You battled on for a while, and this is what we now have fresh in our memories like it was yesterday. Please watch over wee sis Rosie.J as she has us worrying at the moment so you look out for her. Too soon for her to be giving us these worries. Anyway go for now. Love and miss you as always, I am very sad which I know you wont like to see. Mum xxxxxxx
Its time to rest your eyes and go to sleep, you are one of the brightest stars up in the sky
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Hi Robbie,
Know your mum & dad and had the pleasure of meeting you once as well.I saw your wee sister at the lights being switched on at Lomond Shores and she did a great job as i'm sure you know.I just wanted to say hello and i loved looking at your pictures. What a gorgeous smile.God bless.Love Vikki McKeown.






























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