| Location | Balloch. |
| Age | 6 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/07/2001 |
| Date of Death | 31/01/2008 |
| Visitors | 8,284 since 25/05/2008 |
| Creator |
ROBBIE HOLLERN
BORN 31ST JULY 2001 BECAME AN ANGEL 31ST JANUARY 2008
Robbie lived in Balloch with his mum, dad and wee sister Rosie.Julie.
He was born healthy on time and developed normally until 20 months old when he woke up and had what
we thought was a shake or shiver. These continued more frequently over the next few days. After
taking him to the doctors where they seemed really concerned about Robbie's developement delay which
we had never noticed, being our first child we watched Robbie reach milestones which to us seemed to
be on time. Talking, crawling, standing, pulling himself up at furniture and playing with toys for
his age.
Any developement Robbie had deteriorated rapidly until it was no more, we were doing everything for
him. He was being treated for myoclonic epilepsy as they had no diagnosis for us at this stage.
After nearly 2 years and more deterioration the doctors did further tests where this confirmed
Robbie was now blind and he was then diagnosed with INFANTILE BATTENS DISEASE which is the most
aggresive form of Battens. At this time I was pregnant with my second child and had about 6 weeks to
go. They asked if I wanted tested then but what would have been the point. We decided to wait till
after the birth and try enjoy our first few months with our new baby.
This was'nt to be and after about 6 months we had Rosie.J. tested and it was confimed that she also
had the disease. We were absolutely devastated. How could life be so cruel, not only were we going
to lose one child now another.
Robbie was such a handsome beautiful and wonderful boy who touched the hearts of everyone around
him. Even people who had just maybe read his story in the paper. Our hearts are breaking and we miss
him so much we still cant really believe he is not here. Rosie keeps us going, we try live day to
day but it is hard not to think ahead as we know what is in store.
You will find anything you want know about Battens on the internet.
IN MEMORY OF OUR TWINKLING STAR ROBBIE XXX
ROBBIE NOW HAS A NEW LITTLE SISTER ROXIE JOY WHO WAS BORN ON 24TH JUNE 2009. SHE IS HEALTHY AND FREE
FROM BATTENS DISEASE.
Hello Robbie
Hi Robbie,
Thinking of you lots and of your mum and dad and of your gorgeous sister Rosie. Your Auntie Mel told me Rosie wasn't feeling too good and Jeff and I are thinking of her and wishing her a speedy recovery.
You, and the boys, Lachlan and Jack, being the strongest, bravest boys that we all know, need to send Rosie lots of love and brave best wishes for her to get better soon.
Love your new photo with your cheeky smile!
Hope you boys are all behaving !
Love Sharon & Jeff XX
Miss you my darling boy!
Well Robbie the end to an awful year which meant losing you. Your wee sister Rosie.J and dad are spending it in hospital as she is still not well and baffling the doctors. So they will bring in the bells together in there, whereas I will be here alone so you will have to keep me company. You know I dont like the bells anyway and you used to always be sick without fail every year just as they were about to strike. Think it was your way of getting me through them. Won't be easy this year or any year for that matter without you here. The tears are streaming down my face as I write this Robbie, my heart is breaking I miss you so much and your wee sister is just like watching you every day though she seems much more progressed with her illness than you seemed at this stage. Anyway just going to phone dad before I go to bed for the night so mind go blow some kisses and angel hugs their way and then come back and snuggle up to me.
Love you son, Mum xxxxxxx
happy new year.
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$$$$$$$$$$$$… new Year! …$
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… … … … … … $ LOVE TO YOU AND YOUR ANGEL ROBBIE X
HI
Hi Robbie have finally started to tell people that I am having a baby and that your are going to be a big brother and Rosie.J a big sister. Just needed time for it to sink in that the baby is not going to have Battens Disease like you and Rosie.J had. I know you will continue to watch over me and keep me safe. Love and miss you lots Mum xxxxxxx
LOVE YOU ROBBIE.X
Well Robbie this time last year you were all tucked up in mum and dad's bed getting ready for santa coming. You were really good that night and we thank god that we decided to take you in with us that night as little did we know it was to be your last christmas eve with us. I can't bear to celebrate this year without you, I can't help it and everyone has been really understanding. I know you are in a better place and doing all the things a young boy should be doing with all your friends and gran will be giving you some extra cuddles and kisses for us. Anyway I know you are near and watching over us and your wee sis Rosie.J so you make sure you are wrapped up well and have lots of fun.
I love you very much Robbie, miss you. Mum xxxxxxx
Merry Christmas Robbie
To my little nephew Robbie, how lucky are you that Gran is looking after you now. Hope Santa is good to you. Lots of love xxx
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Xmas
I am soaring high on Xmas day
God made me an angel my wings I display
Heaven is only a moment away
So don't worry rosie I'll be there to play
To mammy and daddy who gave me so much
I will be close by you'll feel my touch
The gift that I bring will fill you with joy
So always remember I'm your big boy
Merry xmas
My Christmas Wish For You
My Christmas wish for you, my friend
Is not a simple one
For I wish you hope and joy and peace
Days filled with warmth and sun
I wish you love and friendship too
Throughout the coming year
Lots of laughter and happiness
To fill your world with cheer
May you count your blessings, one by one
And when totaled by the lot
May you find all you've been given
To be more than what you sought
May your journeys be short, your burdens light
May your spirit never grow old
May all your clouds have silver linings
And your rainbows pots of gold
I wish this all and so much more
May all your dreams come true
May you have a Merry Christmas friend
And a happy New Year, too ..
xxxxxxxxxxxxxx
LOVE FOR YOU SON
I love you son.
Beyond words that I can ever begin to tell you
how much, I will hold you forever in my heart
each and every day.
If I were ever given the chance to be anything
I wanted to become, there's nothing I would have
rather been........... than your parent.
And there is no one I would rather have had as my
SON............ than you.
LOVE YOU MORE EVERY DAY ROBBIE. MUM XXXXXXX
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