| Location | Balloch. |
| Age | 6 years |
| Cause of Death | Genetic Condition |
| Date of Birth | 31/07/2001 |
| Date of Death | 31/01/2008 |
| Visitors | 8,284 since 25/05/2008 |
| Creator |
ROBBIE HOLLERN
BORN 31ST JULY 2001 BECAME AN ANGEL 31ST JANUARY 2008
Robbie lived in Balloch with his mum, dad and wee sister Rosie.Julie.
He was born healthy on time and developed normally until 20 months old when he woke up and had what
we thought was a shake or shiver. These continued more frequently over the next few days. After
taking him to the doctors where they seemed really concerned about Robbie's developement delay which
we had never noticed, being our first child we watched Robbie reach milestones which to us seemed to
be on time. Talking, crawling, standing, pulling himself up at furniture and playing with toys for
his age.
Any developement Robbie had deteriorated rapidly until it was no more, we were doing everything for
him. He was being treated for myoclonic epilepsy as they had no diagnosis for us at this stage.
After nearly 2 years and more deterioration the doctors did further tests where this confirmed
Robbie was now blind and he was then diagnosed with INFANTILE BATTENS DISEASE which is the most
aggresive form of Battens. At this time I was pregnant with my second child and had about 6 weeks to
go. They asked if I wanted tested then but what would have been the point. We decided to wait till
after the birth and try enjoy our first few months with our new baby.
This was'nt to be and after about 6 months we had Rosie.J. tested and it was confimed that she also
had the disease. We were absolutely devastated. How could life be so cruel, not only were we going
to lose one child now another.
Robbie was such a handsome beautiful and wonderful boy who touched the hearts of everyone around
him. Even people who had just maybe read his story in the paper. Our hearts are breaking and we miss
him so much we still cant really believe he is not here. Rosie keeps us going, we try live day to
day but it is hard not to think ahead as we know what is in store.
You will find anything you want know about Battens on the internet.
IN MEMORY OF OUR TWINKLING STAR ROBBIE XXX
ROBBIE NOW HAS A NEW LITTLE SISTER ROXIE JOY WHO WAS BORN ON 24TH JUNE 2009. SHE IS HEALTHY AND FREE
FROM BATTENS DISEASE.
ANGEL
Have put the picture of you on Robbie last year at your school play at Lomond Shores. You and your friends were the angels, little did we know then that you were soon to become one for real. As usual that day I cried my eyes out watching you. Every day just now thinking of you more than ever and remembering this time last year coming up to christmas. All your friends at school will be practicing for this year, hopefully I will be able to go see them but again it will be very upsetting. I miss you so, so much Robbie and at the moment dont see how I will ever get over you not being here. Just to be able to hold, kiss, or even smell you. Touch your soft skin and have a great big cuddle. I would give anything for a moment with you again. Love you my darling handsome boy. Mum xxxxxxx
ANGEL HUGS & KISSES
Hi Robbie send some of your hugs and kisses for wee sis she has a chest infection and has'nt been too well. We all miss and love you very much. Hope you like all your new stones in your garden, think it makes it look nice and tidy. Take care my darling boy.
Mum xxxxxxx
Your brave son Robbie
I am so very sorry for the loss of your gorgeous son Robbie. How very sad. I am deeply saddened by your loss. Robbie, please watchover your family especially your mummy she loves you so much. Rest in peace sweetheart. Look after my Henry. take care xxx
HI
HI ROBBIE SORRY NOT BEEN ON FOR A WHILE NOT BEEN FEELING TO GOOD ALOT ON MY MIND. DID YOU LIKE THE FIREWORK.HOPE YOU HAVE BEEN GOOD UP THERE HEHE.NOT SEEN AUNTIE JULIE FOR A COUPLE OF WEEKS THINKS SHE HIDING . HOPE YOU ARE WATCHING OVER WEE RJ AND YOUR MUMMY AND DADDY WHO MISS YOU LOADS HERE A BIG KISS FROM ME NIGHT NIGHT ROBBIE
ROSIE.J
Well Robbie your wee sister was in the spotlight last night again. She turned on the christmas lights down at lomond shores. She done really well and stayed awake and even managed a smile. She has started to do this quite a lot now just like you used to. Mum was really upset as usual crying my eyes out behind the stage and did'nt think I was going to be able to go on with her at first, but dad talked me into it. Hope you were watching all the fireworks there was lots and lots of them afterwards. Anyway will go for now as I have to go get more stones for your garden just to finish it off.
Love you Robbie. Mum xxxxxxx
hey wee guy
I finally got access to your site. better late than never I suppose Robbie.
our angel's always guarding us
although we may not know
he guides us through our darkest days
when we are feeling low
he's always watching over us
he's by our side each day
to place a kiss upon our cheek
and soothe our tears away
his angel wings surround us
and embrace us with his love
his memory is a shining star
twinkling down from skies above
carol xx
From Dragonfly newsletter
-FIND A SONG-
Find a song to remember me
A special song that'll always be
Just play it when you want to find
A special part of me in your mind
Find a song that's good in your ears
That makes the stars shine through your tears
A song where fairies dance in your heart
So we're never really far apart.
**************************************************
I will always have songs of yours on my mind Robbie.
Some that make me smile some days and cry on others.
I will always see you shining bright in the sky as you will always be my twinkling star that shines so bright always.
Love you Robbie Hollern. Mum xxxxxxx
AIDAN
Is'nt that nice Robbie, Aidan's mum Claire has found your website. He is doing better but still keep a close eye on him for us all. He needs you special angel to watch over him and keep him safe a while longer. Have lots of fun tonight watching the fireworks, auntie Melanie is setting some off, but be safe.
Love you Mum xxxxxxx
From baby rhyanas mummy xx
Mum I'm an Angel now
My spirit will be free
I'm an Angel now in heaven
So please don't cry for me
I was chosen by our Lord above
And now I'm in his care
Whenever you need me
Just look inside your heart
I promise I'll be there
No one can ever take away
Our bond with one another
For I'll always be your precious child
As you'll always be my mother
So if you cannot find your way
Or the road home seems far
Just look up to the heavens
And I'll be your guiding star
Mum I'm an Angel now
My spirit will be free
I'm an Angel now in heaven
Theres no need to cry for me xxx xxx xxx xxx
HALLOWEEN
Well Robbie this time last year mum was rushing about getting green paint for you to dress up as SHREK. Can't bear to do halloween this year, the thought of all the kids coming to the door is just too much to bear at the moment. Me your dad and ROSIE.J will just snuggle up and hope you and all your angel friends are having a ball at your party above in the clouds.
Love you darling Mum xxxxxxx
Create an ever lasting memorial for your loved ones.
Start here »
Using the options below you can add this memorial to your personal garden.
| I am Robbie's ... | |
| Add to Garden: | |
| Notifications: | Text Message |
There have been 1333 candles lit for Robbie.
